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The Sturge-Weber Foundation

The Sturge-Weber Foundation (SWF) was founded by Kirk and Karen Ball. The foundation’s international mission is to improve the quality of life and care for people with Sturge-Weber Syndrome (SWS) and associated Port Wine Birthmark conditions. They began searching for answers after their daughter, Kaelin, was diagnosed with SWS at birth. The SWF was incorporated in the USA in 1987 as an International 501(c)(3) non-profit organization for patients, parents, professionals and others concerned with SWS. In 1992, the mission was expanded to also support and serve individuals with capillary vascular birthmarks, Klippel Trenaunay (KT) and Port Wine Birthmarks.

  • P.O. Box 418, Mt. Freedom, NJ 07970
  • 973.895.4445
  • 973.895.4846
  • Nonprofit

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